more fun with hospitals

June 1st Kayleigh had some more issues. went to bed ok but woke up screaming multiple times in about 2 hrs. finally gave up on trying to get her back to sleep and brought her out to the other room and let her calm down - noticed she was not acting quite right. about 10mins after she calmed down we checked her heart rate - upper 160's - high. a few minutes later it had come down but the extra sound was there. at that point we noticed that her lips were really dusky/blueish. ems 101 - pink is good, BLUE IS BAD. called 911. also noticed her skin was clammy. the blue lips/clammy skin started to clear up by the time the ambo arrived but was not completely gone. ekg in the ambo was normal, hr was running about 140s. towards the end of transport (we went to HMC) she started getting agitated about the seatbelts and got fussy, during which time her HR would go high, up to 180, 190s, but would come right back down as soon as she calmed down. her oxygen levels were 98-100%, which is good. most of the symptoms had resolved by the time we got to hershey ER; they put us in a private waiting room. nearly 2 hrs later.....i found a nurse and asked if she was going to be seen anytime soon, or if since her symptoms had now all resolved (she had been sitting on the floor playing, giggling, laughing, crawling around, nursed, and fallen asleep) would we be better off just going home and following up with the pediatrician in the morning (since it was now close to midnight). this particular nurse checked with the charge nurse and said it would be another 30-45 mins before they would have a bed open. since all her symptoms had resolved, rather than sit there and wait for 5hrs for them to tell us they couldn't find anything go home and follow up with the ped, we decided to just go home, get some sleep, and call her ped. she slept fine, and as soon as the office opened this morning i called them.
got an appt with the dr who saw her last time (the one that sent her to the cardiologist) @ 1015. saw him and she was acting fine the whole time. everything checked out and since we have ruled out everything major that can cause the symptoms she was having (cardiac and respiratory) he said she has Autonomic Cyanosis - its kinda like when you are in the pool and the water is kinda cold and your lips get blue - basically the body shunts blood away from the lips (and sometimes fingers/toes) for whatever reason, and hers apparently is exaggerated. its not likely that there is a medical reason for it to be happening and she should outgrow it. if it continues, gets worse, or we notice other symptoms, then we do need to do some further testing (EEG to rule out seizures - rare possibility, silent acid reflux - more likely but still not probable as we have not noticed any other symptoms that are consistent).
so, for now, we just keep an eye on her. if we notice the blueish tint we are supposed to assess/etc, but don't need to take her to the hospital unless she is having trouble breathing, or etc. i'm also keeping track of what we notice when, to see if we can find any rhyme or reason.
eta - 17lbs 3.5oz @ped office ;)